dc.date.accessioned | 2018-12-21T13:08:40Z | |
dc.date.available | 2018-12-21T13:08:40Z | |
dc.date.issued | 2018 | |
dc.identifier.uri | http://hdl.handle.net/10852/65969 | |
dc.language.iso | en | en_US |
dc.relation.haspart | Paper I: von der Lippe C, Frich JC, Harris A, Solbrække KN. Experiences of being heterozygous for Fabry disease: A qualitative study. J Genet Couns. 2016;25(5):1085-92. doi: 10.1007/s10897-016-9941-1. PMID: 26948256 The paper is not available in DUO due to publisher restrictions. The published version is available at: https://doi.org/10.1007/s10897-016-9941-1 | |
dc.relation.haspart | Paper II: von der Lippe C, Frich JC, Harris A, Solbrække KN. “It was a lot tougher than I thought it would be.” A qualitative study on the changing nature of being a hemophilia carrier. J Genet Couns. 2017;26(6):1324-1332. doi: 10.1007/s10897-017-0112-9. PMID: 28547664. The paper is not available in DUO due to publisher restrictions. The published version is available at: https://doi.org/10.1007/s10897-017-0112-9 | |
dc.relation.haspart | Paper III: von der Lippe C, Frich JC, Harris A, Solbraekke KN. Treatment of hemophilia: A qualitative study of mothers’ perspectives. Pediatr Blood Cancer. 2017;64(1):121-127. doi: 10.1002/pbc.26167. PMID: 27472376 The paper is not available in DUO due to publisher restrictions. The published version is available at: https://doi.org/10.1002/pbc.26167 | |
dc.relation.uri | https://doi.org/10.1007/s10897-016-9941-1 | |
dc.relation.uri | https://doi.org/10.1007/s10897-017-0112-9 | |
dc.relation.uri | https://doi.org/10.1002/pbc.26167 | |
dc.title | Not just a carrier – A qualitative study of psychosocial aspects of women’s experiences of living with an X-linked disorder | en_US |
dc.type | Doctoral thesis | en_US |
dc.creator.author | von der Lippe, Charlotte | |
dc.identifier.urn | URN:NBN:no-68489 | |
dc.type.document | Doktoravhandling | en_US |
dc.identifier.fulltext | Fulltext https://www.duo.uio.no/bitstream/handle/10852/65969/1/PhD-vonderLippe-DUO.pdf | |