Not just a carrier – A qualitative study of psychosocial aspects of women’s experiences of living with an X-linked disorder
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Abstract
No abstract.List of papers
Paper I: von der Lippe C, Frich JC, Harris A, Solbrække KN. Experiences of being heterozygous for Fabry disease: A qualitative study. J Genet Couns. 2016;25(5):1085-92. doi: 10.1007/s10897-016-9941-1. PMID: 26948256 The paper is not available in DUO due to publisher restrictions. The published version is available at: https://doi.org/10.1007/s10897-016-9941-1 |
Paper II: von der Lippe C, Frich JC, Harris A, Solbrække KN. “It was a lot tougher than I thought it would be.” A qualitative study on the changing nature of being a hemophilia carrier. J Genet Couns. 2017;26(6):1324-1332. doi: 10.1007/s10897-017-0112-9. PMID: 28547664. The paper is not available in DUO due to publisher restrictions. The published version is available at: https://doi.org/10.1007/s10897-017-0112-9 |
Paper III: von der Lippe C, Frich JC, Harris A, Solbraekke KN. Treatment of hemophilia: A qualitative study of mothers’ perspectives. Pediatr Blood Cancer. 2017;64(1):121-127. doi: 10.1002/pbc.26167. PMID: 27472376 The paper is not available in DUO due to publisher restrictions. The published version is available at: https://doi.org/10.1002/pbc.26167 |