dc.date.accessioned | 2023-02-07T17:57:16Z | |
dc.date.available | 2023-02-07T17:57:16Z | |
dc.date.created | 2023-01-07T14:43:51Z | |
dc.date.issued | 2022 | |
dc.identifier.citation | Ulnes, Maria Albrektsson, Henrik Størdal, Ketil Saalman, Robert Ludvigsson, Jonas F. Mårild, Karl Staffan . Regional Swedish study found that one in seven coeliac patients experienced loss of follow up during childhood. Acta Paediatrica. 2022, 1-12 | |
dc.identifier.uri | http://hdl.handle.net/10852/99742 | |
dc.description.abstract | Aim
To examine the clinical follow up of paediatric coeliac disease and the rate of loss of follow up during childhood, for which data are scarce.
Methods
In a cohort of coeliac children diagnosed in 2013–2018 in Gothenburg, Sweden, we retrospectively explored the follow-up practice of paediatric coeliac disease until June 2021. We used medical records from hospital-based paediatric gastroenterology and general paediatric outpatient clinics, laboratory records, and questionnaires. Loss of follow up was defined no coeliac disease-related follow up or tissue transglutaminase test over the past 2 years of study enrolment.
Results
We included 162 children (58% girls) aged 7.8–18.2 years (average 12.7). Most participants (76%) were followed at general paediatric outpatient clinics rather than hospital-based clinics. After 2.3–8.8 (average 5.3) years since diagnosis, 23 patients (14%; 95% confidence interval, 9%–21%) had been lost to follow up. Patients with loss of follow up were more often boys (61% versus 39%, p = 0.08), with a somewhat longer average disease duration of 5.8 versus 5.2 years (p = 0.11). There were no between-group differences in socio-economic characteristics and patient-reported experience measures of coeliac disease care.
Conclusion
One in seven coeliac patients may experience loss of follow up during childhood. | |
dc.language | EN | |
dc.rights | Attribution-NonCommercial 4.0 International | |
dc.rights.uri | https://creativecommons.org/licenses/by-nc/4.0/ | |
dc.title | Regional Swedish study found that one in seven coeliac patients experienced loss of follow up during childhood | |
dc.title.alternative | ENEngelskEnglishRegional Swedish study found that one in seven coeliac patients experienced loss of follow up during childhood | |
dc.type | Journal article | |
dc.creator.author | Ulnes, Maria | |
dc.creator.author | Albrektsson, Henrik | |
dc.creator.author | Størdal, Ketil | |
dc.creator.author | Saalman, Robert | |
dc.creator.author | Ludvigsson, Jonas F. | |
dc.creator.author | Mårild, Karl Staffan | |
cristin.unitcode | 185,53,46,11 | |
cristin.unitname | Pediatrisk forskningsinstitutt | |
cristin.ispublished | true | |
cristin.fulltext | original | |
cristin.qualitycode | 1 | |
dc.identifier.cristin | 2102490 | |
dc.identifier.bibliographiccitation | info:ofi/fmt:kev:mtx:ctx&ctx_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.jtitle=Acta Paediatrica&rft.volume=&rft.spage=1&rft.date=2022 | |
dc.identifier.jtitle | Acta Paediatrica | |
dc.identifier.startpage | 1 | |
dc.identifier.endpage | 12 | |
dc.identifier.doi | https://doi.org/10.1111/apa.16633 | |
dc.type.document | Tidsskriftartikkel | |
dc.type.peerreviewed | Peer reviewed | |
dc.source.issn | 0803-5253 | |
dc.type.version | PublishedVersion | |