dc.date.accessioned | 2021-02-14T19:26:04Z | |
dc.date.available | 2021-02-14T19:26:04Z | |
dc.date.created | 2020-09-25T10:41:03Z | |
dc.date.issued | 2020 | |
dc.identifier.citation | Wang, Katherine Eftang, Cathrine N. Jakobsen, Rune Bruhn Årøen, Asbjørn . Review of response rates over time in registry-based studies using patient-reported outcome measures. BMJ Open. 2020, 10 | |
dc.identifier.uri | http://hdl.handle.net/10852/83218 | |
dc.description.abstract | Objectives: Gain an overview of expected response rates (RRs) to patient-reported outcome measures (PROMs) in clinical quality registry-based studies and long-term cohorts in order to better evaluate the validity of registries and registry-based studies. Examine the trends of RRs over time and how they vary with study type, questionnaire format, and the use of reminders. Design: Literature review with systematic search. Data sources: PubMed, MEDLINE, EMBASE, kvalitetsregistre. no, kvalitetsregister. se and sundhed. dk. Eligibility criteria: Articles in all areas of medical research using registry-based data or cohort design with at least two follow-up time points collecting PROMs and reporting RRs. Annual reports of registries including PROMs that report RRs for at least two time points. Primary outcome measure: RRs to PROMs. Results: A total of 10 articles, 12 registry reports and 6 registry articles were included in the review. The overall RR at baseline was 75%±22.1 but decreased over time. Cohort studies had a markedly better RR (baseline 97%±4.7) compared with registry-based data at all time points (baseline 72%±21.8). For questionnaire formats, paper had the highest RR at 86%±19.4, a mix of electronic and paper had the second highest at 71%±15.1 and the electronic-only format had a substantially lower RR at 42%±8.7. Sending one reminder (82%±16.5) or more than one reminder (76%±20.9) to non-responders resulted in a higher RR than sending no reminders (39%±6.7). Conclusions: The large variation and downward trend of RRs to PROMs in cohort and registry-based studies are of concern and should be assessed and addressed when using registry data in both research and clinical practice. | |
dc.language | EN | |
dc.publisher | BMJ Publishing Group | |
dc.rights | Attribution-NonCommercial 4.0 International | |
dc.rights.uri | https://creativecommons.org/licenses/by-nc/4.0/ | |
dc.title | Review of response rates over time in registry-based studies using patient-reported outcome measures | |
dc.type | Journal article | |
dc.creator.author | Wang, Katherine | |
dc.creator.author | Eftang, Cathrine N. | |
dc.creator.author | Jakobsen, Rune Bruhn | |
dc.creator.author | Årøen, Asbjørn | |
cristin.unitcode | 185,52,11,0 | |
cristin.unitname | Avdeling for helseledelse og helseøkonomi | |
cristin.ispublished | true | |
cristin.fulltext | original | |
cristin.qualitycode | 1 | |
dc.identifier.cristin | 1833371 | |
dc.identifier.bibliographiccitation | info:ofi/fmt:kev:mtx:ctx&ctx_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.jtitle=BMJ Open&rft.volume=10&rft.spage=&rft.date=2020 | |
dc.identifier.jtitle | BMJ Open | |
dc.identifier.volume | 10 | |
dc.identifier.issue | 8 | |
dc.identifier.pagecount | 9 | |
dc.identifier.doi | https://doi.org/10.1136/bmjopen-2019-030808 | |
dc.identifier.urn | URN:NBN:no-85954 | |
dc.type.document | Tidsskriftartikkel | |
dc.type.peerreviewed | Peer reviewed | |
dc.source.issn | 2044-6055 | |
dc.identifier.fulltext | Fulltext https://www.duo.uio.no/bitstream/handle/10852/83218/2/Wang%2BBMJ%2BOpen%2B2020.pdf | |
dc.type.version | PublishedVersion | |
cristin.articleid | e030808 | |