Now showing items 1-2 of 2

  • Fjermestad, Krister; Kanavin, Øivind J.; Hoxmark, Lise Beate; Nyhus, Livø (Journal article / Tidsskriftartikkel / PublishedVersion; Peer reviewed, 2020)
    Background Persons with rare disorders may experience poorer health services due to limited knowledge about rare disorders among health professionals. Knowledge about how persons with rare disorders perceive health ...
  • Fjermestad, Krister; Nyhus, Livø; Kanavin, Øivind J.; Heiberg, Arvid; Hoxmark, Lise Beate (Journal article / Tidsskriftartikkel / SubmittedVersion, 2018)
    Abstract Neurofibromatosis type 1 (NF1) is a genetic, autosomal dominant multi-organ disease characterized by susceptibility to tumor formation, changes in skin pigmentation, skeletal abnormalities, and neuropsychological ...