Browsing Institutt for helse og samfunn by Author "Nance, Martha"

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  • Health care delivery practices in Huntington’s disease specialty clinics: an international survey 
    Frich, Jan C; Rae, Daniela; Roxburgh, Richard; Miedzybrodzka, Zofia H.; Edmondson, Mary; Pope, Erika Bjorklund; Goodman, LaVonne; Haddad, Monica S.; Giuliano, Joe; Nelson, Eugene C.; Guttman, Mark; Nance, Martha (Journal article / Tidsskriftartikkel / PublishedVersion; Peer reviewed, 2016)
    Background: Little is known about the organization of clinical services for Huntington’s disease (HD). Objective: To describe how health care services are organized and delivered in HD-clinics taking part in or eligible ...
  • What we don't need to prove but need to do in multidisciplinary treatment and care in Huntington's disease: a position paper 
    Mühlbӓck, Alzbeta; van Walsem, Marleen; Nance, Martha; Arnesen, Astri; Page, Kirsty; Fisher, Alexandra; van Kampen, Manon; Nuzzi, Angela; Limpert, Roy; Fossmo, Hanne L.; Cruickshank, Travis; Veenhuizen, Ruth (Journal article / Tidsskriftartikkel / PublishedVersion; Peer reviewed, 2023)
    Background Huntington’s disease is a complex neurodegenerative hereditary disease with symptoms in all domains of a person’s functioning. It begins after a healthy start in life and leads through the ...