Browsing Institutt for helse og samfunn by Author "Ellul, Bridget"

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  • A practical checklist for return of results from genomic research in the European contex 
    Vears, Danya F.; Hallowell, Nina; Bentzen, Heidi Beate; Ellul, Bridget; Nøst, Therese Haugdahl; Kerasidou, Angeliki; Kerr, Shona M.; Mayrhofer, Michaela Th.; Mežinska, Signe; Ormondroyd, Elizabeth; Solberg, Berge; Sand, Birgitte Wirum; Ljøsne, Isabelle Sylvie Budin (Journal article / Tidsskriftartikkel / PublishedVersion; Peer reviewed, 2023)
    Abstract An increasing number of European research projects return, or plan to return, individual genomic research results (IRR) to participants. While data access is a data subject’s right under the General Data Protection ...