Now showing items 1-2 of 2

  • Bathen, Trine; Johansen, Heidi; Strømme, Hilde; Velvin, Gry (Journal article / Tidsskriftartikkel / PublishedVersion; Peer reviewed, 2022)
    Background Experienced fatigue is an under-recognized and under-researched feature in persons with many different rare diseases. A better overview of the characteristics of existing research on experienced ...
  • Velvin, Gry; Dammann, Brede; Haagensen, Trond; Johansen, Heidi; Strømme, Hilde; Geirdal, Amy Ø.; Bathen, Trine (Journal article / Tidsskriftartikkel / PublishedVersion; Peer reviewed, 2023)
    Background Work participation is a crucial aspect of health outcome and an important part of life for most people with rare genetic diseases. Despite that work participation is a social determinant of health ...